Within the Ehlers-Danlos community, my primary focus is on education and raising awareness about the condition. I am proud to work closely with the organization Pathways to Trust in this effort.

The education I provide starts as early as primary school and also addresses what it means to live with a chronic illness, and how children can already play a role in creating understanding and support. Pathways to Trust offers education to students, hospitals, and institutions about Ehlers-Danlos Syndrome.

We will be launching our work in Europe very soon, and once we do, you will definitely find more information about this here on this page.